The Diana Camidge Foundation is raising funds to find a cure for the illness which tragically took her life.

She died aged 46, from an extremely rare prion disease Gerstmann–Sträussler–Scheinker (GSS). This is a form of Creutzfeldt-Jakob disease (CJD) and there is currently no cure. 

The Medical Research Council (MRC Prion Unit) and the National Prion Clinic (NPC) have created a drug which could potentially treat this illness. Find out more.

The Foundation was set up with the specific objective to raise money for www.curecjd.org. 

Professor of Neurology Simon Mead, who looked after Diana during her illness, says:

“The UCLH Trust administered PRN100 (an antibody for treating CJD) to patients for the first time in the world after a judge in the Court of Protection confirmed that it is lawful and in the patient’s best interests to receive the unlicensed treatment.”

“The pioneering treatment announced would not have been possible without the Foundation’s contribution and ongoing support. The need for funds to support our ongoing work continues as we work towards a meaningful treatment for CJD.”

"We want to end the devastating effect of this disease and save lives. Thank you so much for supporting us – it really is appreciated." John (Diana's brother)